23 signs you grew up with ehlers danlos syndrome

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls.

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body.

23 signs you grew up with ehlers danlos syndrome

Back to Health A to Z. Ehlers-Danlos syndromes EDS are a group of rare inherited conditions that affect connective tissue. Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones. EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling. The different types of EDS are caused by faults in certain genes that make connective tissue weaker. Depending on the type of EDS, the faulty gene may have been inherited from 1 parent or both parents. Sometimes the faulty gene is not inherited, but occurs in the person for the first time. The diagnosis is made based on a person's medical history and a physical examination. It affects the blood vessels and internal organs, which can cause them to split open and lead to life-threatening bleeding. Some people have problems caused by hypermobility, but do not have any of the specific EDS conditions. You do not usually need to worry if you only have a few symptoms and they're not causing any problems. Joint hypermobility, for example, is relatively common, affecting around 1 in 30 people.

At Statcare, we understand the challenges faced by individuals with EDS and offer comprehensive healthcare solutions. Admissions Requirements.

Ehlers-Danlos syndrome EDS is a group of genetic disorders that affect the connective tissues. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Most children with EDS have hypermobile joints that are prone to full or partial dislocation. However, there are several causes of hypermobility, and many children with hypermobile joints do not have EDS. Many children with EDS also have soft, fragile skin and bruise easily. EDS occurs in about one out of every 5, babies born worldwide.

Urgent Care. This connective tissue disorder affects individuals in various ways, impacting their joints, skin, and overall quality of life. If you suspect that you may have grown up with EDS, it's important to understand the signs and seek appropriate support. EDS is a group of genetic disorders that affect the body's connective tissues, which provide support and structure to various organs and systems. This condition is characterized by faulty collagen production, leading to symptoms such as hypermobility, joint instability, and fragile skin. If you resonate with several of the signs mentioned above, it's crucial to consult with a healthcare professional who specializes in EDS. They can provide an accurate diagnosis and develop a personalized treatment plan to manage your symptoms.

23 signs you grew up with ehlers danlos syndrome

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body. While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people. There is no cure for Ehler-Danlos syndrome. A few ways to manage Ehler-Danlos syndrome are:.

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For some, the condition is relatively mild, while for others their symptoms can be disabling. EDS occurs in about one out of every 5, babies born worldwide. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Conclusion Growing up with Ehlers Danlos Syndrome can present a range of challenges, from chronic pain and joint instability to skin fragility and delayed wound healing. Easy to understand without a scientific background. Overview Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. July 7, Allscripts EPSi. While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people. Remember, you don't have to face this journey alone. Classical EDS: Symptoms may include elastic, stretchy skin that bruises easily, hypermobile joints, muscle weakness, and delayed development. Ophthalmology Department The Department of Ophthalmology offers the latest and best in diagnostics and care for children with vision problems. Information: Self-refer for treatment If you have Ehlers-Danlos syndromes, you might be able to refer yourself directly to services for help with your condition without seeing a GP.

Although Ehlers-Danlos syndrome EDS is a condition you are born with, it may take many years or decades before you are diagnosed. There are 13 subtypes of Ehlers-Danlos syndrome, though the hypermobile subtype is the most common.

Cardiology Department The Department of Cardiology at the Benderson Family Heart Center is the largest pediatric cardiology center in the United States and one of the most specialized in the world. This content does not have an Arabic version. It can affect boys and girls from all racial and ethnic backgrounds. Cardiovascular Complications : EDS can affect the heart and blood vessels, leading to conditions like mitral valve prolapse and aortic root dilation. Join our community of individuals with Ehlers Danlos Syndrome and find the support you need to navigate life with this condition. Accessed Aug. The Department of Cardiology at the Benderson Family Heart Center is the largest pediatric cardiology center in the United States and one of the most specialized in the world. Learn more about Cardiac Imaging. Learn more about Lower Extremity Program. Latest Posts. Ehlers-Danlos syndromes. Disclaimer: The content in this article is provided for general informational purposes only. I discussed it with my doctor and they ran some bloodwork. If you are unsure of which package to buy - do the biggest - it is so worth it! This gives rise to the characteristic features of Ehler-Danlos syndrome.